TheBanyanTree: Life Stories 172
Tobie Shapiro
tobie at shpilchas.net
Wed Mar 7 07:34:12 PST 2007
March 7, 200000007
Dear Amazing wonders,
So we took Meyshe to the doctor yesterday
morning. The doctor verified that he had an ear
infection after removing a wad of earwax from his
ear the size of a marble. She prescribed an
antibiotic and some ear drops for the pain.
Good. We were on the right track.
Then yesterday afternoon, Meyshe came
walking into the room and said, "What's this
yellow stuff coming out of my eye?" And indeed
there was yellow stuff coming out of his eye. It
was gooped on his eyelashes. His eye looked
swollen. Here we go again.
I called the medical advice line. The
nurse said that it was all part of the same
thing, the eyes being deeply involved with the
ears; both are being affected by the same bugs.
Put warm compresses on it. The antibiotic ought
to work on it. Not to worry.
So Meyshe is home from school on
Wednesday morning, which is when I have my
writing class. DAMN. I thought it over. Under
usual circumstances, I could leave Meyshe alone
for a few hours, but while he's sick, I just
couldn't see my way clear to leave him. I had to
call the instructor and give my regrets. They
were big regrets. So should I write all morning
in honour of the class I'm missing?
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Freaking the passengers
A long time ago, way before I was born,
before my parents had an inkling of each other,
in fact, in 1932, my father, then seventeen years
old, had a surgical procedure done on him to
correct a deviated septum. The condition had
caused him a lot of travail, difficulty
breathing, snoring, and it exacerbated his
allergies of which there were a plethora. He was
surrounded by the pollens, grasses and four
legged beasts to which he was allergic, and in
allergy season, he was a mess.
So, his father being an ear, eye, nose
and throat specialist, decided to take a scalpel
to the inside of his nose and rearrange the
retaining walls. They planned on doing this in
the heighth of allergy season, which was not a
good idea. But it was all state of the art back
in 1932, and he was lucky they even had septum
shaped scalpels. What happened was a series of
flukes that nearly cost him his life and left him
with a permanent scar and a neurological
condition.
The surgery seemed to go well enough, but
the aftermath was not good. An infection set in
at the site of the surgery, and this spread to
the mastoid bone which had to be removed. When
they were removing the mastoid bone, the
infection spread to the meninges. This developed
into a cyst which put pressure on the brain.
This all sparked a case of meningitis, an
incurable disease, a near death sentence, at that
time. Only a miracle would pull him through.
His parents, steeped in the culture from the old
country, Lithuania, changed his name so the angel
of death wouldn't find him. I don't know how the
name was changed, whether they had to go to a
Rabbi, or a judge, but they did so. He lay in his
hospital room, screaming and complaining, so that
they had to move him to a private room. While
they were moving him, they took his name off the
charts of the who's who in hospital beds, and
this was read, erroneously, as a death. His
death was reported in the obituary section of the
Passaic newspaper, and for years afterwards, he
would bump into people who thought they were
seeing a ghost, would rub their eyes, scream, or
go into a swoon. He used to tell that story with
great satisfaction and pleasure. The fact that
he scared the bajeezus out of people tickled him,
so he'd repeat the story without requests, many
times, many times.
About a decade later, when he was already
married to my mother, the scar tissue on the
mininges began to put pressure on the brain, and
this caused what were called, "uncinate syndrome
seizures." He had a form of induced epilepsy
that could not be corrected. When he'd have
these seizures, he never fully lost
consciousness, but would be transported into
another state. He was awake but not awake.
These were not shaking and quaking seizures.
They presented themselves as a few minutes of
bizarre behaviour. Since his behaviour was
pretty bizarre to begin with, it was sometimes
difficult to tell that he was having an attack
unless you knew him very well. He might repeat a
motion over and over, grind his teeth, stare off
into space, say some weird non sequiturs, or just
shut down and not say or do anything at all for a
while. Then he'd come out of it, not remembering
a thing about what had gone on. My mother would
inform him that he'd had an attack, which would
explain his feelings of disorientation and the
gap in time. Usually, he listened to her and
took note. It straightened him out a bit,
relieved the state of confusion.
To control these attacks, they put him on
Dilantin, a potent anti-epileptic medication that
played tricks with his moods, gave him a hot
temper, made him even less predictable and more
frightening then he had been before. I tiptoed
around him, but often got screamed at for no
apparent reason, or accused of a variety of
wretched transgressions of which I was wholly
innocent. Whenever they adjusted his medication,
we had to watch out for the side effects, because
they could last days, weeks, while his body got
accustomed to the new dosage.
He knew what to do to bring on an attack.
Drink alcohol. He was not supposed to drink
alcohol at all, because of the interaction with
his medication and the likelihood that it would
bring on a series of seizures. So when he wanted
to torture my mother, he'd open up a bottle of
beer, or slam back a glass or two of rotgut wine.
Then she'd have to hover over him to prevent him
from hurting himself or compromising others'
safety. He'd get a delighted naughty sadistic
look on his face and say, "I think I'll have a
beer!" He'd wait for a reaction. If there was
none, he'd rattle around in the refrigerator,
finding a can of beer or cheap wine and he'd
noisily pour himself a glass, take it in front of
her, repeat his commentary. "I think I'll have a
glass of wine. Here goes. . . " And he'd pour
it down his gullet in one swallow, then smack his
lips loudly and exhale, "Aaaaaaaah!" It wasn't
long before the effects of the insult to his
chemical balance showed up in an uncinate
syndrome attack or two. He'd glaze over and rub
his leg repetitively for a couple minutes. Or
continue to do whatever he'd been doing when the
seizure came on. I watched him keep spooning
sugar into his coffee. A dozen times, maybe, the
sugar mounding up above the liquid before it
dissolved and fell into the cup.
"Justin, you've just had an attack. You
know you shouldn't have alcohol. Why do you do
that?" And if he were still determined enough,
he'd get himself another glass, playing with his
own body to pull a sadistic trick on his wife. I
never understood it. I just loathed it. It rid
me of any sympathy I might have had for his
neurological condition. I found him contemptible.
Once, we were on a trip up through
Oregon, probably visiting his sister, Selma, in
Portland. We were traversing these windy
mountain roads, sheer cliffs on one side, and
curlicues of asphalt under wheel. He was
driving. Suddenly, his grip on the steering
wheel became rigid. He kept steering to the
center of the road. He was staring off into
space. My mother was good in a crisis, as you
can imagine she'd have to be with three neurotic
kids and a lunatic husband. She grabbed the
wheel, steered the car back to the right, to the
side of the road, reached over with her foot and
put on the brake. The car came to a stop. She
pulled on the emergency brake.
"Justin. You're having an attack." He
just stared. "Get out of the driver's seat and
come around to the passenger's side." He opened
his door, got out and walked around the car to
the other side, got in, sat down and kept staring
ahead. My mother had traded places with him.
Now she was driving. She drove on for a mile or
so when he finally came out of his seizure. He
suddenly looked startled, the old stiff muscles
and angry disposition emerged. Glory be. He was
awake.
"What happened?" he asked, seeing that he
wasn't where he had been and there had been a
chunk of time removed from his memory.
"You had an attack," she said, softly, so
that Daniel, Dana and I wouldn't hear what she
was confiding in him. But we were on top of
this. This was a family moment. We were at high
alert. We would have heard a kleenex hit the
outside of the car.
"You had an attack while you were driving. And I took over."
His face turned red. "I did not!" He
turned to us in the back seat. "She's lying.
She's trying to make me go crazy. I didn't have
an attack, did I! This is all part of her plan
to make it seem as if I'm crazy, when it's she
who's crazy!"
We shivered, white to translucent,
shaking our heads, "No." She kept driving.
After a while, he stopped ranting. But the
subject kept coming up, and it was enough to keep
us scared. That was part of the beauty of his
condition. He could scare the living daylights
out of us for free.
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--
Tobie Helene Shapiro
Berkeley, California USA
tobie at shpilchas.net
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