TheBanyanTree: Update

[Gloria]

Thanks for sharing, Monique. I’m always up for hearing/reading personal
stories and the thoughts that bounce around about them. Also always up for
learning about disease, also known as dis-ease in my world.

Sometimes I reflect on what I previously considered a struggle in my daily
life. I laugh at that now. I’ve learned a lot about what it means to have
to think and stay focused on my task at hand; whether it be filling my
weekly pill box (the horrors!), or to just simply walk down the front
stairs. I’ve rarely used handrails and now? I better remember to grab it
and watch where I’m going or I just might get there too quickly.

Cheers for having answers on the suspected UTI and the side effects from
it. I’m learning a lot about just how common UTI’s are in auto-immune
disease patients. One more thing that prompts the “well, that sucks”
statement. Bah!

Keep on keepin’ on, one moment at a time. What else can anybody do when
being challenged with every step in an ever-changing ever-surprising way?

>



I love you, PD agression or not. Practice your snarl in the mirror. To
> perfection.
>
> L
>
> On Sun, Jul 14, 2019, 9:14 PM Monique Colver <monique.colver at gmail.com>
> wrote:
>
> > WARNING: There will be mention of PD here, so anyone who doesn't want to
> > hear that crap can stop reading now. There is a common misperception that
> > PD involves only tremors and anything else I say is made up to evoke
> > sympathy, which is the last thing on my mind. But one person does want to
> > know.
> >
> > I'm being referred to gastro because I have gastro issues. It happens
> with
> > PD, and mine started before PD was diagnosed. But whatever.
> >
> > Last week I was going to go to the gym with Diana and Scott - he has been
> > recently diagnosed with PD and they go to the gym most days because
> > exercise is highly recommended for us. Diana hates the gym like I do, but
> > she goes to support Scott, who prefers not to talk about PD at all. I
> > haven't been exercising much because of issues referenced in the previous
> > paragraph.
> >
> > I was excited! I wanted to see what I could do! I wanted to exercises my
> > way back to functionality!
> >
> > I'd been feeling a little rundown, but that's not new, so whatever.
> Friday
> > morning I wolk up in significant pain, so after I ate something I went
> back
> > to bed. Pain and nausea. Then after a nap I went to work. The pain was
> > worse though, and two hours before Diana was going to pick me up I said,
> > "crap, I must have a UTI," and it was only getting worse. This wasn't the
> > kind of thing one wants to wait on over a weekend.
> >
> > My doctor couldn't fit in me in at the end of a Friday, go figger, so
> > Andrew made an online appt for me with Zoomcare who had always been great
> > as a secondary last minute provider.
> >
> > By 5 pm I was checked in and attempting to fill a tiny bottle.
> >
> > Side note: little known fact. People with PD have a higher incidence of
> > UTI's. No one knows why yet, but it happens. I've also heard many stories
> > of PWP (people with Parkinson's) becoming aggressive and unreasonable
> when
> > they have a UTI. Also, no explanation for this, but it's a pretty common
> > trope.
> >
> > So yes, it was a UTI, and they wanted to do more tests to make sure
> > nothing else was going on since there's pain in other areas and there's
> > also been blood. I left after a huge shot in the hip and a bottle of
> > antibiotics, and after paying a few hundred bucks, still better than the
> > ER. The hip has been in pain ever since. Then we stopped by the grocery
> > store on the way home and I had other scripts to pick up anyway.
> >
> > While wandering the aisles we were talking because we do that, and
> > apparently I slipped into hyper aggressive mode without knowing it. My
> > husband rounded on me as if I'd said something other than what I'd been
> > saying and I told him to go wait while I finished shopping. I  couldn't
> > think clearly so I got cereal, something, and m&m's.
> >
> > So he tells me I became very angry and aggressive, and all I remember is
> > talking in a normal voice. He does not make these things up, and he does
> > not overreact and I've always assumed the PWP's with aggression while
> > having UTI'S had a other issues - like more advanced PD and dementia.
> From
> > my perspective, I didn't do anything out of the ordinary. But I did, and
> my
> > memory of it is false, totally false.
> >
> > Now he knows it's a side effect, and I'm not intentionally turning mean.
> >
> > PD affects so so many things. I'm going to be a PD expert eventually! But
> > if I don't write it down, I'll forget it all!
> >
> >
> > Monique
> > Sent from my iPad
> >
> >
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> >
>
>
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