TheBanyanTree: Update

[LaLinda]

I'm sorry for all of this PD drama. Are there any PD perks that you know
of, yet? Can you still eat Lucky Charms? I can't eat Lucky Charms, though
it has nothing to do with my particular NM disease. It's a whole 'nuther
thing, but would bring me much joy. I could make a list of this which would
bring me joy, were I allowed them, or were they compatible with my comfort.
That could be fun. For a bit, as long as I forget, which is pretty likely,
that they are not good for me.

I love you, PD agression or not. Practice your snarl in the mirror. To
perfection.

L

On Sun, Jul 14, 2019, 9:14 PM Monique Colver <monique.colver at gmail.com>
wrote:

> WARNING: There will be mention of PD here, so anyone who doesn't want to
> hear that crap can stop reading now. There is a common misperception that
> PD involves only tremors and anything else I say is made up to evoke
> sympathy, which is the last thing on my mind. But one person does want to
> know.
>
> I'm being referred to gastro because I have gastro issues. It happens with
> PD, and mine started before PD was diagnosed. But whatever.
>
> Last week I was going to go to the gym with Diana and Scott - he has been
> recently diagnosed with PD and they go to the gym most days because
> exercise is highly recommended for us. Diana hates the gym like I do, but
> she goes to support Scott, who prefers not to talk about PD at all. I
> haven't been exercising much because of issues referenced in the previous
> paragraph.
>
> I was excited! I wanted to see what I could do! I wanted to exercises my
> way back to functionality!
>
> I'd been feeling a little rundown, but that's not new, so whatever. Friday
> morning I wolk up in significant pain, so after I ate something I went back
> to bed. Pain and nausea. Then after a nap I went to work. The pain was
> worse though, and two hours before Diana was going to pick me up I said,
> "crap, I must have a UTI," and it was only getting worse. This wasn't the
> kind of thing one wants to wait on over a weekend.
>
> My doctor couldn't fit in me in at the end of a Friday, go figger, so
> Andrew made an online appt for me with Zoomcare who had always been great
> as a secondary last minute provider.
>
> By 5 pm I was checked in and attempting to fill a tiny bottle.
>
> Side note: little known fact. People with PD have a higher incidence of
> UTI's. No one knows why yet, but it happens. I've also heard many stories
> of PWP (people with Parkinson's) becoming aggressive and unreasonable when
> they have a UTI. Also, no explanation for this, but it's a pretty common
> trope.
>
> So yes, it was a UTI, and they wanted to do more tests to make sure
> nothing else was going on since there's pain in other areas and there's
> also been blood. I left after a huge shot in the hip and a bottle of
> antibiotics, and after paying a few hundred bucks, still better than the
> ER. The hip has been in pain ever since. Then we stopped by the grocery
> store on the way home and I had other scripts to pick up anyway.
>
> While wandering the aisles we were talking because we do that, and
> apparently I slipped into hyper aggressive mode without knowing it. My
> husband rounded on me as if I'd said something other than what I'd been
> saying and I told him to go wait while I finished shopping. I  couldn't
> think clearly so I got cereal, something, and m&m's.
>
> So he tells me I became very angry and aggressive, and all I remember is
> talking in a normal voice. He does not make these things up, and he does
> not overreact and I've always assumed the PWP's with aggression while
> having UTI'S had a other issues - like more advanced PD and dementia. From
> my perspective, I didn't do anything out of the ordinary. But I did, and my
> memory of it is false, totally false.
>
> Now he knows it's a side effect, and I'm not intentionally turning mean.
>
> PD affects so so many things. I'm going to be a PD expert eventually! But
> if I don't write it down, I'll forget it all!
>
>
> Monique
> Sent from my iPad
>
>
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