TheBanyanTree: Update

Wed Jul 17 12:14:55 PDT 2019

I'm pretty sure I'm not elderly, but with my mind going is hard to keep track.

Monique
Sent from my iPad

> On Jul 17, 2019, at 12:06 PM, Teague, Julie Anna <jateague at indiana.edu> wrote:
> 
> Man, that is valuable information  to hang  on  to.  Not  only because I have an elderly mother, but because I'm barely a step behind her in the age department.
> 
> 
> -----Original Message-----
> From: TheBanyanTree <thebanyantree-bounces at lists.remsset.com> On Behalf Of auntiesash
> Sent: Wednesday, July 17, 2019 2:56 PM
> To: A comfortable place to meet other people and exchange your own *original* writings. <thebanyantree at lists.remsset.com>
> Subject: Re: TheBanyanTree: Update
> 
> That reaction to UTI's isn't uncommon.  Happened to my mom - she went nutso (more than usual) & I was overwhelmed - could NOT figure out what was happening.  The advice nurse said, sorta casually, "Oh - probably a UTI"  & I thought maybe I'd gone nutso.  A UTI?  She's seeing stuff & tried to hit me & acting WHACK & you say UTI????
> 
> Yep.  She said it's often that way with older folks or those with chronic illness (Mom was both of those things).
> 
> Sure enough - one day of antibiotics later & she was back to (what we were
> calling) normal.
> 
> Hope your antibiotic kicks in & has you back to your eccentric but kind self soon.
> 
> xo
> sash
> 
> *"If you're not barefoot, then you're overdressed."*
> 
> 
>> On Mon, Jul 15, 2019 at 10:49 AM Laura Hicks <wolfljsh at gmail.com> wrote:
>> 
>> I, for one, appreciate your PD and other life experiences posts. For 
>> one thing, I’ve learned lot about Parkinsons that I would probably 
>> have never learned otherwise. Also, you’re my friend, and I like 
>> knowing what’s going on in your life, the good and the bad.
>> 
>> Laura
>> wolfljsh at gmail.com
>> 
>> On Sun, Jul 14, 2019 at 9:14 PM Monique Colver 
>> <monique.colver at gmail.com>
>> wrote:
>> 
>>> WARNING: There will be mention of PD here, so anyone who doesn't 
>>> want to hear that crap can stop reading now. There is a common 
>>> misperception that PD involves only tremors and anything else I say 
>>> is made up to evoke sympathy, which is the last thing on my mind. 
>>> But one person does want to know.
>>> 
>>> I'm being referred to gastro because I have gastro issues. It 
>>> happens
>> with
>>> PD, and mine started before PD was diagnosed. But whatever.
>>> 
>>> Last week I was going to go to the gym with Diana and Scott - he has 
>>> been recently diagnosed with PD and they go to the gym most days 
>>> because exercise is highly recommended for us. Diana hates the gym 
>>> like I do, but she goes to support Scott, who prefers not to talk 
>>> about PD at all. I haven't been exercising much because of issues 
>>> referenced in the previous paragraph.
>>> 
>>> I was excited! I wanted to see what I could do! I wanted to 
>>> exercises my way back to functionality!
>>> 
>>> I'd been feeling a little rundown, but that's not new, so whatever.
>> Friday
>>> morning I wolk up in significant pain, so after I ate something I 
>>> went
>> back
>>> to bed. Pain and nausea. Then after a nap I went to work. The pain 
>>> was worse though, and two hours before Diana was going to pick me up 
>>> I said, "crap, I must have a UTI," and it was only getting worse. 
>>> This wasn't the kind of thing one wants to wait on over a weekend.
>>> 
>>> My doctor couldn't fit in me in at the end of a Friday, go figger, 
>>> so Andrew made an online appt for me with Zoomcare who had always 
>>> been great as a secondary last minute provider.
>>> 
>>> By 5 pm I was checked in and attempting to fill a tiny bottle.
>>> 
>>> Side note: little known fact. People with PD have a higher incidence 
>>> of UTI's. No one knows why yet, but it happens. I've also heard many 
>>> stories of PWP (people with Parkinson's) becoming aggressive and 
>>> unreasonable
>> when
>>> they have a UTI. Also, no explanation for this, but it's a pretty 
>>> common trope.
>>> 
>>> So yes, it was a UTI, and they wanted to do more tests to make sure 
>>> nothing else was going on since there's pain in other areas and 
>>> there's also been blood. I left after a huge shot in the hip and a 
>>> bottle of antibiotics, and after paying a few hundred bucks, still 
>>> better than the ER. The hip has been in pain ever since. Then we 
>>> stopped by the grocery store on the way home and I had other scripts to pick up anyway.
>>> 
>>> While wandering the aisles we were talking because we do that, and 
>>> apparently I slipped into hyper aggressive mode without knowing it. 
>>> My husband rounded on me as if I'd said something other than what 
>>> I'd been saying and I told him to go wait while I finished shopping. 
>>> I  couldn't think clearly so I got cereal, something, and m&m's.
>>> 
>>> So he tells me I became very angry and aggressive, and all I 
>>> remember is talking in a normal voice. He does not make these things 
>>> up, and he does not overreact and I've always assumed the PWP's with 
>>> aggression while having UTI'S had a other issues - like more advanced PD and dementia.
>> From
>>> my perspective, I didn't do anything out of the ordinary. But I did, 
>>> and
>> my
>>> memory of it is false, totally false.
>>> 
>>> Now he knows it's a side effect, and I'm not intentionally turning mean.
>>> 
>>> PD affects so so many things. I'm going to be a PD expert 
>>> eventually! But if I don't write it down, I'll forget it all!
>>> 
>>> 
>>> Monique
>>> Sent from my iPad
>>> 
>>> 
>>> Want to change your name, email address, or password? Or have you 
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>>> 
>> --
>> Laura
>> wolfljsh at gmail.com
>> 
>> 
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> 
> 
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> 
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